Can You Get Tourette’s Later in Life?

The question of whether a person can develop Tourette Syndrome later in life often arises from the sudden appearance of involuntary movements or sounds in adulthood. While tics are widely recognized as a childhood phenomenon, the emergence of a new movement disorder in an adult is a source of worry and confusion. It is a common misconception that any adult-onset tic disorder is automatically Tourette Syndrome (TS). The diagnosis of TS is tied to a specific developmental timeline, meaning a new onset of tics in adulthood requires careful investigation to determine the exact cause and appropriate classification.

The Standard Age Requirement for Tourette Syndrome

Tourette Syndrome is formally classified as a neurodevelopmental disorder, meaning it originates during brain development. The Diagnostic and Statistical Manual of Mental Disorders (DSM-5) defines strict criteria for a TS diagnosis, one of which is the age of onset. This criterion requires that tics must first appear before the individual turns 18 years old.

If a person experiences the full range of TS symptoms—multiple motor tics and at least one vocal tic—but symptoms begin after age 18, the formal diagnosis cannot be Tourette Syndrome. Instead, the condition is categorized as a different type of tic disorder, such as “Other Specified Tic Disorder.” This distinction highlights that the biological and developmental origins of true TS are rooted in childhood. The age cutoff separates the primary, genetically influenced form of the disorder from other tic-like conditions.

Distinguishing Adult-Onset Tics from TS

When tics start in adulthood, they are referred to as an adult-onset tic disorder. Clinicians differentiate these late-onset cases into two main categories: primary (idiopathic) and secondary. Primary adult-onset tics are rare and involve a new onset without an identifiable external trigger or underlying medical condition. These cases are sometimes considered a delayed manifestation of a genetically predisposed tic disorder.

Secondary adult-onset tics are much more common and are caused by a separate, underlying medical or environmental factor. This type of tic is often referred to as “tourettism” because the movements mimic TS but stem from a different pathology. The presence of an identifiable trigger shifts the diagnostic focus away from a neurodevelopmental cause and toward a symptomatic one. Therefore, the clinical approach prioritizes ruling out these secondary causes before considering a rare, late-onset primary disorder.

Secondary Causes of Late-Onset Tics

For adults experiencing new tics, identifying the underlying cause is necessary, as tics are frequently a symptom of another condition. Certain medications are a common cause, particularly those that affect dopamine pathways in the brain, such as some antipsychotics. This phenomenon is sometimes termed tardive Tourettism and can also be induced by stimulant medications used to treat ADHD. In these cases, the tics are a side effect of the drug’s interference with neurotransmitter function.

Neurological events and physical trauma can also lead to the sudden onset of tics. A stroke, traumatic brain injury (TBI), or neurodegenerative diseases such as Huntington’s disease have been linked to the development of tic-like movements. These causes are associated with damage or dysfunction in the basal ganglia, the brain structures that control movement. Infections, or the body’s autoimmune response, may also be a trigger, particularly when an autoimmune reaction mistakenly attacks brain cells.

Psychogenic Non-Epileptic Tics (P-NETs), or functional tics, represent another category of late-onset movement disorders. These tics are not caused by structural brain damage or a known neurological disease but are related to psychological distress or trauma. While P-NETs can resemble organic tics, they often exhibit clinical clues suggesting a functional origin, such as movements that are inconsistent or suppressible when distracted. These diverse secondary causes make a thorough medical evaluation for new adult tics important.

Treatment Approaches for Adult Tic Disorders

The management of adult tic disorders focuses first on addressing the underlying cause if a secondary trigger is identified. If a medication is suspected, adjusting the dosage or switching drugs may lead to a resolution of the tics. For tics caused by an injury or neurological event, treatment centers on symptom management.

Behavioral therapy is the first line of intervention for managing tic symptoms in adults. Comprehensive Behavioral Intervention for Tics (CBIT) is a structured therapy that trains individuals to recognize the premonitory urge preceding a tic. The therapy teaches them to perform a competing movement that is physically incompatible with the tic, helping to reduce its frequency and severity.

When tics are severe and significantly impairing daily life, medication may be introduced alongside behavioral therapy. The main classes of drugs used include alpha-adrenergic agonists, which are preferred due to fewer side effects, and dopamine receptor blocking agents, such as certain antipsychotic medications. These medications modulate neurotransmitter activity in the brain to dampen the intensity of the involuntary movements.