What Happens If Your Bladder Is Removed?

Cystectomy involves the complete removal of the urinary bladder. When the bladder is removed, the surgeon must simultaneously create a new pathway for the kidneys to eliminate waste fluid from the body, a process known as urinary diversion. This reconstruction is necessary because the kidneys continuously produce urine that must be safely expelled to maintain health. The decision to undergo this extensive surgery results in permanent changes to the patient’s anatomy and bodily functions. The long-term success of the procedure depends heavily on the chosen method of urinary reconstruction and the patient’s subsequent adaptation.

Medical Indications for Cystectomy

The majority of patients undergo a radical cystectomy due to muscle-invasive bladder cancer. This cancer has grown into the deep muscle layers of the bladder wall and poses a significant threat of spreading to other organs. For these tumors, removing the entire organ, along with nearby lymph nodes and sometimes adjacent reproductive organs, offers the best chance for a complete cure.

Cystectomy is also considered for high-grade non-muscle-invasive bladder cancer that has not responded to treatments like intravesical immunotherapy. In these cases, the aggressive nature of the disease makes removal necessary to prevent progression. Less commonly, the surgery is performed for non-cancerous but debilitating conditions.

These non-malignant indications include severe, chronic inflammatory conditions like interstitial cystitis, extensive damage from previous radiation therapy, congenital abnormalities, or profound neurogenic bladder dysfunction. The decision always weighs the severity of the underlying condition against the complexity of the surgery and the lifelong changes involved.

Surgical Methods for Urinary Diversion

Following cystectomy, the surgeon creates a new system for urine elimination, typically utilizing a segment of the patient’s own intestine. These reconstruction methods are categorized into incontinent diversions, which drain continuously, and continent diversions, which store urine internally. The choice depends on factors including the patient’s overall health, manual dexterity, and personal preference.

Ileal Conduit

The most common method is the Ileal Conduit, an incontinent diversion using a short segment of the small intestine (ileum). The ureters are connected to this isolated segment, which is brought through the abdominal wall to create a stoma. Urine drains continuously into an external collection pouch worn on the abdomen. This procedure is considered the most straightforward and has the lowest overall complication rate.

Continent Cutaneous Reservoir

A second option is the Continent Cutaneous Reservoir, sometimes called an Indiana Pouch. This continent diversion uses a longer segment of the intestine to construct an internal storage pouch within the abdomen. The pouch uses a specialized valve mechanism to prevent leakage. The patient empties this reservoir by inserting a catheter through a small, flush stoma on the skin several times a day.

Orthotopic Neobladder

The third approach is the Orthotopic Neobladder, which aims to restore a near-natural voiding route. A segment of the small intestine is reshaped into a pouch and connected directly to the urethra. This allows the patient to potentially pass urine through the natural channel, although the neobladder lacks the nerve connections of the original organ. Patients learn to empty the neobladder by relaxing the pelvic floor and using abdominal pressure (Valsalva voiding).

The Recovery Process

The immediate recovery phase demands significant physical resources from the patient. Patients typically remain hospitalized for five to seven days while staff manage pain and monitor for complications like infection or bowel obstruction. Early mobilization, such as walking shortly after the operation, is encouraged to help restore bowel function and prevent blood clots.

In the initial days, several drainage tubes and catheters are present to protect the new urinary system while healing. These temporary measures, which may include ureteral stents and external surgical drains, are slowly removed over the course of the hospital stay and subsequent weeks.

Full physical recovery usually takes between six to eight weeks, though feeling completely restored can take several months. During this time, patients must restrict heavy lifting and strenuous activity to allow surgical sites to heal fully. Patients and their families also begin learning to manage the new urinary diversion, often guided by specialized ostomy nurses.

The immediate post-operative period also involves psychological adjustment to the physical changes. Patients may experience sadness or anxiety about body image and how the change will affect their relationships. Open communication with the care team and connecting with support resources assists in navigating this initial period of adaptation.

Managing Daily Life After Diversion

Daily life after cystectomy involves specific routines tailored to the type of urinary diversion.

Ileal Conduit Management

For those with an Ileal Conduit, daily life centers on the care of the stoma and the external appliance. The ostomy pouch must be emptied several times daily when it is about one-third full, and the entire appliance is typically changed every few days. Proper hygiene around the stoma is necessary to maintain skin health and prevent irritation from continuous urine exposure.

Continent Reservoir Management

Patients with a Continent Cutaneous Reservoir must adhere to a strict schedule of intermittent self-catheterization to empty the internal pouch. This involves inserting a catheter through the abdominal stoma, usually every four to six hours, to prevent overfilling and potential damage. This diversion also requires regular flushing to remove mucus naturally produced by the intestinal lining used to create the reservoir.

Neobladder Management

For patients with an Orthotopic Neobladder, adjustment involves learning a timed voiding schedule, as the new reservoir does not signal fullness. Training begins with emptying the neobladder every two to three hours and gradually increasing the interval. Many patients experience some leakage, particularly at night, necessitating the use of protective padding because the sphincter muscles are often affected.

Regardless of the diversion type, long-term health monitoring is necessary due to the use of intestinal tissue in the urinary tract. The absorption of urine components by the bowel can lead to metabolic imbalances, such as chronic mild acidosis, which may require medical management. Adequate fluid intake is encouraged to help prevent urinary stones and reduce the risk of urinary tract infections.